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Rank: Newbie
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Joined: 10/12/2011 Posts: 9
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Hi all,
Probably a common issue for a lot of people but I'm having extreme wrist pain and not sure what to do to help relieve the symptoms. I was diagnosed 3 years ago, went on MTX for a year but got awful side-effects and then the same with sulfasalazine - however during these times my RA and joint pain was hardly noticeable. Because of side-effects the consultant has tried me on Hydroxychloroquine (5 months now) which has had no side-effects but my joint pain has returned with a vengeance. I saw consultant a month ago and told him this, he mentioned the possibility of trying one of the biologics but wanted me to stay on Hydrox until I next see him in Feb. Since then I've started getting the worst pain I've had in my wrist - waking me up it's so bad. I contacted the rheumy nurse to ask for advice and to see if appointment with consultant could be brought forward. They did another blood test and decided to keep the appointment for Feb!
I'm in a lot of pain now - I'll be hassling the hospital and my doctors tomorrow - but wondered what advice people have. I'm a guitarist for a living so it's having an impact on my ability to work as well which I told the nurse. Can I get a cortisone injection from the doctors? A the moment I'm using painkillers and prednisolone (10 mg) which is having very little effect
Any help would be greatly appreciated
Thanks
Ashley
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Rank: Advanced Member  Groups: Registered
Joined: 9/15/2013 Posts: 125
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hi Ashley
I had severe wrist pain for a number of years (not wishing to depress you further) and yes you can get a cortisone injection into the wrist I had them done by both GP and Rheumatologist. My best friend became a wrist support called a WRIST WRAP which you can get from sports shops , chemists etc (I got mine from Amazon) I tried all sorts before I found the one that worked for me including the ones supplied by the hospital. I eventually opted for a de nervation which cuts the nerve supply to part of the wrist and which for me anyway has been fairly successful
Hopefully you won't need to go down that route but you have my sympathy
Julie
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Rank: Advanced Member  Groups: Registered
Joined: 10/20/2012 Posts: 304 Location: Cheshire
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So sorry to hear about your wrist pain and not too helpful consultant! I too have had/have bilateral wrist pain. My new consultant is I understand referring me to Occupational therapy, they will make some splints for me which I am sure will be better than the one's I bought over the counter. I must say having your wrist strapped is helpful, but like Julie mentioned you can sometimes get intra-articular steroids if deemed appropriate, which do help if given by a competent practitioner. Failing that keep rattling on the door of your consultant. Gogs
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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I'm a guitarist too. There are several possibilities. You need to see your GP 1. It could be your RA 2. It could be carpal tunnel syndrome which can affect guitarists bilaterally due to the unusual hand positions on the fret board and picking / strumming with the right. 3. It could be tenosynovitis affecting the tendons that pass through the wrist bone in line with your thumb. I had that and was first given a blissful steroid / local anaethestic injection but then had to have a De Quervain's procedure to release it (successful). T 4. It could also be a nerve conductivity issue. And if you are really lucky (not) it's a bit of all of them. Splints help and you can play when wearing them at a pinch (depending on which style you play). The best ones I found were over the counter from Boots and I think they were Elastoplast brand Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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Re the waking up with it, have you tried sleeping with your arm on a pillow in front of your chest? Keeping the wrist elevated in this way helps me. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 3/29/2013 Posts: 106 Location: Surrey
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Hi
I was diagnosed with De Quervain's disease before I was diagnosed with RA & still suffer with painful wrists, I touch type which does cause a few problems at work.
I would probably try to see if I could get an appointment with my doctor to have it checked out.
Hope your wrists feel better soon, Louise
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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my left wrist is my worst affected joint and i'm left handed, if i turn a tap i can yelp with pain. i did have cortisone injections in both my shoulders when first diagnosed over 3 years ago now as they were what alerted me that something was wrong .. and i have to say they worked instantly and still do to this day, so definately worth asking about.
i also had carpel tunnel which Paul mentions, but that was specifically in my hand ( right one ) where i had tingling in the fingers and especially the ring finger down the side, i did have the procedure to correct it but must say it was a very brutal procedure one i wouldn't want to go through again, but it doesn't sounds to me like it's carpel tunnel related having had it.
if i do sleep with my hand sort of clenched it can take a few minutes to get it going in the morning, so as Paul suggests maybe take care with the way you are sleeping.
but really i would ask about cortisone it worked wonders on my shoulders,
good luck,
Suzanne
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Rank: Newbie
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Joined: 10/12/2011 Posts: 9
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Thanks everyone for the replies and helpful advice - I saw the doctor yesterday who said they couldn't give me a cortisone injection - that had to come from the hospital? They are going to ring consultant first thing Mon to see if they can speed up the appointment I had a gig last night and had to abandon the guitar playing and just sing after half an hour :-( I am sleeping on my back with my hand on a pillow but the pain is still waking me up during the night - using the computer is aggravating it a lot as well From the replies I'm surprised I haven't been offered a cortisone injection - why is this proving so difficult?
Thanks again for all your help
Ashley
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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ash1966 wrote:Thanks everyone for the replies and helpful advice - I saw the doctor yesterday who said they couldn't give me a cortisone injection - that had to come from the hospital? Yep that's a hospital job - we should have made that clear - sorry ash1966 wrote:I am sleeping on my back with my hand on a pillow but the pain is still waking me up during the night - using the computer is aggravating it a lot as well OK, ref the bed and pillow thing - again I should have been more specific. I meant sleep on your side with the wrist elevated to shoulder level. The point is make sure that the weight is not on any tendons and that they are not extended. You're looking for a nice relaxed posture for your arm. I can't sleep on my back. I just can't get my arm comfortable.[/quote} ash1966 wrote:From the replies I'm surprised I haven't been offered a cortisone injection - why is this proving so difficult? Probably because it's a hospital thing but once you get to see a consultant, you can ask for one and there's no reason why they should not do it immediately, my consultants have done so. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Newbie
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Joined: 10/12/2011 Posts: 9
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Thanks again - this is the worst RA pain I've had - worse than before I was diagnosed. I'm doing what I can to bring my next appointment forward and see if I can get a cortisone injection.
Doctor has given me Tramadol for the pain but it's not touching it - reminds me of having a slipped disc a few years ago and because it was nerve pain, normal painkillers didn't work. I think it was Amitriptyline that finally did the job.
Ashley
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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ash1966 wrote:. I think it was Amitriptyline that finally did the job.
Ashley
Yes - that's one of my cocktail of drugs Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Newbie
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Joined: 10/12/2011 Posts: 9
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Thanks Paul - I've seen the doctor who suspects it's wrist synovitis and/or carpal tunnel. He's also hassling my consultant to try and bring forward my appointment. He phoned him on Tues and was told the rheumy would call back that day with some advice as I was in so much pain but still no word which is frustrating to say the least! I was in touch 3 weeks ago to bring the appt forward so I'm getting peed off now with their lack of action. The pain is worse at the moment, on Tramadol and Amitriptyline as well as Naproxen and steroids but that cocktail isn't giving me much relief. I'n mot sure whether to bypass the red tape and pay to see a private consultant to get a cortisone injection? I'm losing work (I'm a guitarist) and Dec is my busiest month so I'm wanting to get some treatment ASAP. Getting fed up now Ashley
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Rank: Advanced Member  Groups: Registered
Joined: 4/24/2013 Posts: 703 Location: Hexham
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I can understand you getting fed up. I also appreciate the temptation to go private because that's exactly what I did in Aug 2012 to get my diagnosis. You may in fact find that your regular NHS Consultant does private work. That would have the benefit of continuity but for a diagnosis such as the one you're after, that's not so much of an issue. The guy who did my De Quervain's tenosynovitis release was an orthopaedic surgeon. Your risk is that your rheumy appointment gets brought forward at no benefit to you because the first thing he does is refer you to the surgeons, resulting in another wait for an appointment. An appointment is going to cost you around £100. The operation is another thing. I had mine under general anaesthetic. You could try calling BUPA to find out what their scales charge is for a De Quervain's Tenosonyvitis Release procedure is. If it's Carpal tunnel, I believe those are done under local so they would be cheaper. Again BUPA may be able to tell you. If all that is too expensive then you are gonna have to wait for the NHS. What I am afraid of is that either because you are waiting for the op or have had the op but are recovering, December may be a bit of a wipe out for you. Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012) Ulcerative Colitis (1990)
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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just to put my pennie's worth in,
yes carpel tunnel is done under local, i can't lie i found it quite a brutal procedure, my arm was sideways to me, but the Nurse kept hold of my other hand to guide me through what they were doing, but i was well looked after and walked out of the hospital after tea and a cake once it was done.
the scar is quite long well about an inch and a half from the wrist down to the palm, but yes it did work so i'm thankful for that.
and you won't be able to play the guitar for a while, but if needs must ..also just remembered I had a cortisone injection in my hand for trigger finger and it worked so well but it did have to be done at the hospital, so again a wait.
let us know how you get on.
Suzanne
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